Tuesday, September 9, 2014

If I don't laugh, I may cry.

I feel the need to document this season of our lives. The last 5 days have been pretty insane. Well, let's backup a bit more to Friday, August 29th.

Brian was tossing Declan on the bed a bunch of times. One last time. Crying. Intense crying. He won't stop crying. I get his shirt off and ask if he wants to go outside. This usually fixes everything. I see his elbow swelling up. Time to go to the ER.

His humerus near his elbow is fractured. They "splint" it, with a very sophisticated splint that is molded to his arm, then wrapped very well with an ace bandage. It is the entire length of his right arm. Thank goodness he's a lefty, right?

We are entering the Labor Day weekend and were told to expect a call from the River Valley Orthopedic office on Tuesday. If we don't hear from them, call on Wednesday. I call on Tuesday after not hearing in the morning. I have to take him in at 11:00 the next day. So long relaxing hair appointment.

Wednesday, 9-3-14, second day of school. I got to fit 1/2 of my appointment it in (highlights only) and I took off. Declan stayed with Amanda for the hour. Off to the ortho office. The nurse told me he would have to be in a cast. Damn. Now to decide which color...light blue? dark blue? The PA walks in. I ask her what she thinks about color. "Well, I have some bad news and I don't think you have to decide about color right now." Then more instructions that he will need to go to Helen DeVos Children's hospital. She showed me the x-ray. The fracture in his elbow separated and now there is at least one fragment (maybe 2)...will add photos later. I'm no radiologist or any kind of medical expert, but she threw out that he may need surgery and after looking at the x-ray, I didn't see any way around it. Now we had to wait for the call from the Pediatric Orthopedic office at DeVos. We FINALLY got the official call around 5:00 pm that he would definitely be having surgery the following day, 9-4-14 at 12:45. Dr. Cassidy was sent the x-rays and information and did not need to see him, just bring him in for surgery. No food after midnight. Clear fluids like water and juice until 7:00 am. After that....NOTHING, zilch, nada. What the f?

Thursday morning. Connor is waiting to go outside for the bus at 7:53 and gets Declan out of his bed. He comes out holding his cup, asking for milk. I'm on the phone with the nurse from DeVos who was calling to make sure we were given the correct pre-op instructions since the case was boarded so last-minute the day before. Thankfully, she said he could have juice until 8:00. Sweet, 7 minutes to pound as much fluid as possible. Brody has no clue Declan can't eat anything and offers him a pretzel while we stand in their garage waiting for the bus since it was so rainy and gross. He can't have it. Meltdown begins. Thankfully, he was pretty good about not begging for food or drink. He watched Daniel Tiger and I cleaned up as much as possible while we waited for Brian to get home at 10:30 so we could leave. We needed to be at the hospital by 11:00. Finding where you are supposed to go in hospitals stresses me out.

We got taken back pretty quickly and they gave Declan a tiget (not Daniel, but we told him it was) gown and socks to get ready for suregery. He played in the playroom for about 20 minutes while we killed time until we would meet with Dr. Cassidy. We took the new iPad mini (Connor's birthday, technically an iPad for the family). He watched PBS Kids and was pretty lethargic. I thought it was because he was getting tired, and very hungry. Afterall, his procedure was scheduled at his exact nap time!

Dr. Cassidy said they were hoping for a closed case where they could manipulate the bone fragment(s) from the outside and then put pins in to secure the area. If it didn't work, he would have to open. The incision would be about an inch long. The procedure would take anywhere from 5 minutes (closed) to an hour (open). He had to "open". He said since it happened on Friday there was a blood clot between the bone and the fragment and there was no way it was going back without significant "help". He was pleased with the pin placement. A follow-up appointment was scheduled for the following Wednesday, the 10th for more x-rays to make sure the pins haven't shifted. Then he will be in the cast for another 3 weeks after that point. Then the pins come out, and depending on the healing process, he could be in another cast for a few weeks up to a month. Apparently the elbow doesn't get much bloodflow, which is required for bone healing. We were told about possible side-effects from the surgery since it DID affect the growth plate (we were originally told it did not). His elbow could grow faster, and be larger than the other for a while, which may prevent him from straightening his arm completely. It could go in a little bit instead of out (when arms are palms up and outstretched). All of this sounded familiar to me, as my little brother had the same procedure on his elbow when he was 5...about 25 years ago. He has a wicked scar. Hopefully methods and techniques have improved significantly.

With more time to think about cast color, I went with red. We do have family photos scheduled for the 16th. Might as well coordinate...

Declan was groggy coming out of anesthesia and it took a while for him to wake up. He opened his eyes when Brian turned on the Daniel Tiger theme song...I kid you not. He had some water and by 4:10 we were home. He was not back to 100% but while I was at Target getting his prescription, he ate 4 Nutrigrain Bars and wanted a 5th, but I boiled some pasta for him instead. He ate almost all of it and things were going well.

Amanda Schichtel brought us dinner. Bless her heart. After being at the hospital most of the day and the stress from the previous 24 hours, it was so appreciated. Chicken tacos. Yum. Erin Morrissette got Connor off the bus (had to write all of those notes that morning) and he played over there until after dinner when AA brought him home. Crazy day....so I thought. We were discharged from the hospital with "taping a breadbag or garbage bags" to his arm for baths. Really. I ordered a waterproof cast cover on Amazon.com/Prime. He should be able to hold off on having a bath until it arrived.

Fast forward about 8 hours later. 1:00 am. Declan starts screaming in bed. I'm thinking the anesthesia is finally worn off completely and he needs pain meds. Poor guy. The main factor I forgot is that they gave him a narcotic Tylenol for pain....the same stuff he got when he had Hand Foot Mouth a few months ago. Medicines like this do NOT knock him out, but have the opposite effect. He was wide awake. He was also very warm. Why was he warm?? I felt HOT for a few hours. This concerned me. He just had surgery, what if he was having a reaction to something they gave him?? Infection?? I called the number on the paperwork were given at the hospital. I knew Dr. Cassidy was on call. I knew I would be asked what his fever actually was (I never actually take it...I normally can just feel when my kids are hot and feverish), so I pulled out the thermometer. Holy crap it is 103.2º. What the $*#%?

Cassidy calls me back. Get Motrin in him. It is too early to be caused by an infection and his arm would be really painful, etc. Absolutely nothing with Tylenol since his prescription pain meds are Tylenol based. My child hates medicine. The only advantage of the script meds is that he only needs 3 ml vs the 5 mL of Children's Motrin. I somehow got it in him shortly after 4:00 am. It takes almost 2 hours for his fever to come down and we go back to sleep around 6:00. Brian got Connor 90% ready for school so I didn't have to get up (just gave a few instructions from his bed). Declan was still up by 9:00. More Daniel Tiger. I had to keep the Motrin in him or he would have a fever. A really high fever. He acted much better without a fever. By 1:00 pm, he was a beast. He'd napped a little bit already so I thought he may need some of the awake-inducing pain meds. Withink an hour and a half, his fever was back. 103.7º. This is nuts. The poor guy watched a ton of Daniel Tiger and his eyes were about 1/2 open. Misery.

Tammy Kruse brought over some cookies and balloons for the patient. She also said there was a package on the doorstep. Holy cow. The cast cover had already arrived....less than 18 hours after I ordered it!!

The Zagars had already planned to bring us Noodles & Company dinner and eat it with us. Jill and Lucy walked in around 5:00. Declan looked terrible. I put him in his chair on the table to eat something. He really wasn't interested. He may have had 3 bites. PUKE. He threw up about 5 times....all the fluid in his system including the Motrin I'd just given him. There was puke all in the highchair. Chad walks in the door. Welcome to chaos.

Poor D was miserable. We got him out of the chair. It was soaked. Wrapped him in a towel and took him to the bathroom for a bath. B and I had to try to get his cast cover on as a team. He screamed the whole time. World's fastest bath. Got the puke-covered chair and floor taken care of. The bath seemed to cool him down a bit and he fell asleep with Brian in the chair. I was texting with friend, PA, & neighbor Abby and as she said, "puke and rally". He looked like he felt better.

The Zagars left around 6-6:30 and Brian walked into the kitchen and got chills. The kind you get from a fever. Oh boy. He took some Motrin and went to bed. Yes, at 6:30. A few hours later I took his temp. 101º.

I also got a text from Erin Morrissette. Connor's best friend Cam has a fever. He can't get warm.

The first ever Hot Air Balloon Festival was on Friday/Saturday. All of Fridays events were cancelled because of weather. Saturday morning, many of our neighbors saw a beautiful show of balloons pass right over our neighborhood! Connor was the only one awake and he was oblivious. Declan and I had been up at 5:00 and were back asleep at that point. (His fever got really high and he refused to take any medicine, even when I put it in his apple juice. It took a few hours, but came down on its own...but it was a rough night.) Brian's fever was controlled with meds and Declan seemed okay on meds too. So, we all went to the festival after he woke up. They had police cars, a firetruck, ambulance, rescue trucks, etc. We got there too late to go inside, but the boys got to see them. Declan was kind of in beast mode. We got to go inside a giant balloon on a "balloon walk". Those things are massive. Then we talked to the pilots and they distributed "trading cards" with their balloon's photos and some of their story. Connor was excited to collect them and we were anxious to watch them fly again on Saturday night and hopefully come over our neighborhood again!

We got home and Declan crashed. Connor and I have been at each other's throats a bit recently, so I thought we could use some one-on-one time. We headed out looking for balloons around 6:00. They were supposed to launch between 5:30-6:00. The winds were too high and they were delayed and hour. Then we heard that they were not going to fly. The winds were swirling up high in the sky nd it wasn't safe. Boo. Some of them inflated and we got to see the effects of the wind on the balloon. I really wanted them to fly, but also didn't want anyone to get hurt! We picked up corn dogs and Sonic to kill time (that took forever for some reason) and then wen't back to see the "Balloon Glow". It was really pretty and a fun time with Connor.

Declan woke up shortly after we got home. His fever hit a high of 104º. Of course the high fever was alarming, but I got scared when I put my ear on his chest and his heart was beating so fast I couldn't even count that fast. This prompted another call to Dr. Cassidy. Now that Brian was also sick, I felt certain it was from a virus and not a result of the surgery, but I wanted to make sure that I wasn't missing something or passing off something as a viral symptom when it was really something more alarming. We can't exactly easily toss D in a bath to get his fever down, so I was holding him and covering him with cool, damp towels. I thought he would flinch at feeling them. Nope. Brian was dragging...big time. He had a cough, and fever.

Sunday, 9-7-14. I went to the grocery store with Connor while Declan & Brian rested. Brian was holding Declan in the doorway when we got home. More fever. This is ridiculous. More Motrin. The fever fell and that was the last of it. Brian somehow managed to cut the grass even though I thought he may keel over in the process. I think he wanted to sweat out some of the toxins and he has a busy week ahead....it needed to be done. I went across the street with Connor to celebrate our new neighbor's little girl's birthday. Ellie was one and they just invited us over for cake and ice cream. Understandably, Connor and I were the only ones to go. It was good to get out of the house.

Monday. I set my alarm and get up at 5:00. All of this time that I am writing about now, I did not even open my computer. I have SO MUCH work to catch up on. Proofs to get out. I need to get to OfficeMax at some point...sooner than later. Connor got up and went to school. Declan woke up in beast mode at around 9:00, right before Brian headed to Lakeland hospital in St. Joe (an hour away). Everything was "NO" and he couldn't get comfortable or happy. Sweet.  But he is in beast mode even though he doesn't have a fever. He was literally throwing himself on the ground or flailing to get out of my arms. Daniel Tiger was the only thing he wanted. I needed to work. So, that is what we did for most of the day. Even at nap time, he fussed and would randomly call out "Mom". I gave him some more Motrin even though he didn't have a fever anymore. The poor kid did have surgery on Thursday and I'd only given him 2 doses of his pain meds! Maybe that was it??

The mail arrived and Aunt Carrie and Uncle Grant sent him a care package. He got his very own Daniel Tiger. It has 14 phrases and sings. He exclaimed "CLOCK!" because he has a watch on. He hugged him and then was taken back when he started talking. "Button" (to make him talk). He wanted to sit next to him and "rock" him. Then he even asked Brian to rock him. :) However, he only let Daniel sit in the chair with him for a few seconds at a time. I have no clue why...

I was looking at his little head in the chair and I noticed a rash behind his ear. Upon closer inspection it is on the top of his back and he has them on his face and a few on his chest. WHAT?!?! I didn't want to take him in for what was sure to be the most horribly timed virus ever, but now there is a newsworthy virus called "enterovirus" making headlines for sending kids to the ER all across the country. I do some internet research and am pretty sure that Declan has/had Roseola. The symptoms are extremely high fevers from 103-105º. After a few days, the fever goes away pretty abruptly and about that time a rash appears. The rash apparently doesn't itch or hurt and should go away just as quickly. Oh good Lord. Well, if it doesn't hurt it doesn't explain the beast mode, but I'm sure it has something to do with it.

Connor gets off the bus and goes straight to the couch. 101.7º

I'm the only one left. Lord, PLEASE keep me healthy. Boost my immune system so that I can somehow avoid this horrible line of fevers. Brian and Connor now both have rhaspy voices. Brian has more of a cough. I've heard Connor cough a few times, but nothing like what Erin has described of Cam. Another friend, Aidan also has a fever and really bad cough...going on day 4.

I did get Declan in the bath tonight and he was finally happy and acting "normal". His first day of Kids' Time is supposed to be tomorrow/today (Tuesday, the 9th). Do I take him?? It was been well over 24 hours since he has had a fever. I may wait to see how the rash looks and make an assessment then.

So, that brings us to the present. I've been typing for far too long and should have been sleeping. However, once I get vertical it is tough for me to just go back to sleep immediately. So why was I vertical?? Connor came into his room. I had no idea what time it was. He had been sleeping in my bed with Brian. "I threw up." Oh dear. He tried crawling into bed with me, and I hope I didn't hurt his feelings when I said, "no, you can't get in here...I'm sorry, I absolutely cannot get sick." Brian turns on the light to get me up for assistance. It wasn't everywhere, but we got the blanket off the bed, and put him back in the bed with Brian. I got him some Motrin to bring down his high fever...he was shaking, and a cool wash cloth for his head. I also brought in the puke bowl. I still don't know if he coughed really hard and it made him puke or if he has yet another strain of this crazy bug.

I have no idea what today will bring. Connor will not be going to school. I don't know if Brian is going to go in to work. He is still taking fever reducers and now cough drops to ease the pain in his throat. Brian's schedule may determine if Declan gets to go to school, regardless if he has a rash at all. (They aren't supposed to be contagious once the fever is gone.) I have to send and get prints from OfficeMax and make it to the post office at some point today. I realize that my job is not all that important, but when people have paid me to provide a product, I also can't string them along when the materials are typically time sensitive... I may have to get creative. I don't want to cart Connor around when he needs to be in bed. I may see if someone can pick them up for me...I have no idea. I'll figure that out later.

PRAY I STAY HEALTHY!!